Simon sayz

It hasn’t been a good start to 2008. This ain’t the way I wanted to start off the new year but I couldn’t prevent it. Phlegm had built up in my chest and throat area. Last month was a bit of a struggle cos of phlegm. I was even unwell on Christmas Day. Boy was I upset! Now for all this happening again it’s been very frustrating. It’s been both physically and emotionally tough to deal with. My chest and ribs are in bit of pain cos of all the coughing and chest physio. Also my throat has been sore and my whole body aching.

Physically it’s exhausting but emotionally it really wears you down. I wanted to give up and just die. I said things that I shouldn’t of said. Things like ‘it would have been better if I was never born in this world’…obviously you can’t choose whether to be born or not. God has chosen me from the beginning and has a purpose for my life. Also I said to God ‘Why do I need to deal with all this. What wrong have I done to deserve this.’ I was just very frustrated and upset with everything. Life just ain’t fair sometimes.

BUT….

God is so merciful. His grace is sufficient! God showed his miraculous power once again. It was just yesterday that phlegm had stopped bugging me. My grandma and mum had prayed for me earnestly the night before. I believe God answered their prayers. Thank you God! I’ve had a couple of experiences like this. You go through the darkness of life and feel like there’s no way out of it but then God shines a light on your life. He delivers at the right time.

Life is indeed tough. Whatever circumstances you’re in you just gotta keep walking by faith. It might seem like the end of the world sometimes but you gotta keep fighting on. I will continue to keep walking by faith.

Its been a very very long time since I last updated my blog! Well here I am in front of my computer. Firstly I give all thanks and glory to God. Without God I wouldn’t be able to do anything. It’s by God’s grace that I’m able to live my everyday life. A-men!!

The last 2 weeks or so has been a tough one for me. I had just finished building a website for Sydney Esperanza Strings. This was my first website project in about 4-5 months. I previously had revamped a website I did for Northside Enterprise Inc some 4 years ago. That’s all good news!

The not so good news is that my chest had played up again. I had a lot of phlegm in my chest/lungs. This ain’t new to me but it’s frustrating. Its like ‘not this again!’ You just lose all your energy and time. Sometimes it would drag on all day. However by God’s grace my chest is now clear. God has delivered once again. Thank you Lord!

Well it’s just 5 days to Christmas! It’s a very special time of year. A time to celebrate the birth of Jesus our eternal King. A time to share the love and hope of Jesus. Yes! Jesus is the answer. I hope this Christmas will bring peace, joy and comfort to everyone here and around the world.

Time to sign off now. I’ll be back for more bloggin.’ So stay tuned….

Well it’s time to draw 2006 to a close and bring in the new year! It’s actually 2007 now…happy new year!! This year has been a tough one for me…it’s the toughest year I’ve ever had. I’ve been in and out of hospital a few times and have been receiving chest physio at home for 3-4 weeks during the last month. Gosh they’ve beaten the crap out of my chest!

My respiratory function has become weaker so it’s difficult to cough up phlegm. There have been days when I just wanted to give up. I’ve had thoughts of whether I was going to die. A person with muscular dystrophy probably would ponder that question…especially when you hear of someone who has passed away and you think ‘would I be next to go?’

However that’s not what’s in my mind. God has plans and purposes for me. I believe I still have a job to do while I’m on planet earth. A person doesn’t die that easily…it’s not for us to determine that. It’s all in God’s hands. During the time of my distress, God has always been faithful to me. God has shown his awesome love and grace to me. Thank you Lord! I thank you with all my heart.

I hope that I can share the love that God has for me to many people. I believe that’s the reason why I’m still alive today…to spread the good news. A-men!

Well I hope 2007 will be a better year than 2006. I hope that my health will be the best as possible. Importantly I hope to have a deeper walk with God. He is the answer to everything. I can do absolutely nothing without God!

Psalm 23:4 is a bible passage that gives me strength. ‘Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.‘ What an incredible bible passage that is! Thank you Lord!

I attended a seminar on Building Employment Futures about 2 weeks ago at The International College of Management Sydney, Manly (that’s where Nicole Kidman got married by the way). I was there as a guest speaker, talking about my employment success…how I got a job, the support I received, the work I’ve done and importantly what it means to be able to work. I especially pointed out that SEDS had been a major factor in my employment success. I also presented a couple of slides of me in action and some of the work I’ve done.
I was a bit nervous cos it was the first time I did a presentation like this in front of 30 people or so. But I think I did OK.

Also, I had the privilege of meeting The Hon. Dr Sharman Stone, MP Minister for Workforce Participation, who was one of the key speakers. Dr Sharman Stone didn’t see me speak cos she had to leave early but I did have the chance to say hello and pose for a photo.

The main focus of the seminar was to basically send out a message that people with a disability can work and make a contribution to the Australian economy. With the support of the government and disability employment services such as SEDS, I don’t see why people with disabilities can’t work.
By working together I believe we can make a equal and fair society out there. People with a disability deserve a fair go!

Click here for more pics

It’s been a tough start to the year. I’ve been in and out of hospital a few times. It’s the sickest I’ve ever been in my life. My respiratory function has become weaker which is why coughing has become difficult. Using a BiPap machine has given me assistance with my breathing during the night when I sleep. I thank God for guiding and strengthening me through all the difficult times. The fact I exist today is an absolute miracle!!

Well I’m trying to get back into the groove of working again. I have new projects to start working on. I’m looking forward to it. I have the will and determination to battle on! There are other people in more difficult situations than I am. So I gotta give it my best shot and not let circumstances stand in my way. I give thanks to God for his love and strength.